Finding Remission(ish)

“How are you medication free, seriously?” is a question that I get asked all the time. Like not an Instagram wanker ‘you guys ask me all the time’ kind of bullshit lie, but a genuine I-get-askked-ALL-the-time type thing. Whilst I’m flattered that my journey of IBD without medication has proven as such a source of interest, it’s also terrifying – because the truth is, I don’t really know! Continue reading

Life Without Medication

Smile, honey! You don’t have to take any medication. What a wonderful treat! Except is it all it’s cracked up to be? Are we all hoping to reach the day where we no longer rely on surgery, tablets, biologics (etc etc etc) and instead can manage our symptoms more holistically – or is the lack of control a whole other compilation of its own?

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An In-depth Review of Azathioprine

For so much of my time with Crohn’s Disease, I’ve been obsessed with immumnosuppresives. Initially scared of them, followed by a course of them, to finally coming off them – these little buggers are the one of the most popular things that I get asked about! And I get it – those little leaflets you receive telling you all the pros and cons and medical jargon are hell’a confusing!

Now, although I am not a trained professional and therefore cannot recommend any medical treatment for anyone (your body is your body, yo) what I can do is share some of my thoughts, experiences and opinions – and you can take it from there… Continue reading

The Importance of Saying ‘No’

As far back as I can remember, I’ve always been a people pleaser. It’s good to say ‘yes’, it’s polite to say ‘yes’, it’s fun to say ‘yes’. That’s the weird mantra that I’ve always seemed to live by – and although saying ‘yes’ can lead to a more positive existence that opens up a lot of doors, it can also be extremely damaging.

Being diagnosed with an autoimmune disease is like having someone steal all your ‘yes’ power and ration you with a certain number a day. Whilst internally you might still want to be that ‘hell yeah’ individual, the motive gets caught in a tangled web of anxiety, exhaustion and defeatism.

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The Trouble with Living ‘Chronically’

I doubt anyone has ever envied the lifestyle of a person living with a chronic illness. I can’t say that I blame them, but what we go through on a frequent basis is a lot more complex than popping pills and having blood tests. Whilst there is an argument to say ‘what doesn’t kill you makes you stronger’, there is also a small part of me that’s a bit bored of getting ‘stronger’. Here’s my list of things that all people living with a chronic illness can relate to…

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Moving Away from Medication

I’ve resisted writing this post for quite some time as it seems to be a rather controversial subject in the world of Inflammatory Bowel Disease. Since being diagnosed in 2015, I’ve been on a cocktail of different medications including Mesalazine, Prednisolone, Budesonide and Azathioprine. I was always able to control my symptoms with a selection of the above at any one time, but despite achieving remission from Azathioprine, something just didn’t sit right with me.  Continue reading

Hair Loss

It’s strange how as a female, so much of my identity was defined by my hair.
When I was 14, I became absolutely obsessed with my locks – products, extensions, colours…I was a chameleon and I loved it. When I was 16, I told my Mum that I wanted to be a hairdresser (it was a short lived dream) and when I was 20 I decided I wanted to create my own hair-care brand (I didn’t).
Despite these phases, the way my hair looked and felt remained the core of my identity. However, the relationship I have with it today has been somewhat of a challenge. Continue reading

Travelling with Crohn’s – Community Q&A

So, recently I was contacted with a question about whether or not I had ever been travelling whilst having Crohn’s Disease. We’re not talking about a 10 day Holiday to the Balearic Islands, but more like a 10 month trip around Asia. Sadly, I have not done the ‘travelling thanggg’ so rather than give up and be unable to help with any advice, I put the feelers out to you wonderful people, and have managed to get your feedback and create my first Community Q&A post – using your words, your experiences and getting answers from there! Continue reading